In this episode of the "Ask Dr. Mia" podcast, Dr. Mia discusses the importance of personal stories and narratives in the context of dementia and brain health with her guest, Caroline Prioleau. Caroline is a writer and designer associated with the UCSF Memory and Aging Center and the Global Brain Health Institute. The Global Brain Health Institute (GBHI) aims to reduce the international impact of dementia by focusing on brain health, preventing dementia, earlier and more accurate diagnosis, and improving dementia management in communities worldwide. The GBHI brings together fellows from various backgrounds for an intensive year-long program to study brain health, economics, neurology, neuroscience, neuropsychology, arts, creativity, and policy.
One significant aspect of the discussion centers on the Hear Say oral history project, which started in 2016. This project focuses on empathic storytelling and shares stories from individuals affected by dementia and their caregivers. The stories are shared beyond academic walls, emphasizing the power of narrative in the context of dementia care. The project evolved into the creation of a documentary film titled "Keys Bags Names Words," which showcases the experiences of people with Alzheimer's disease and other dementias and aims to inspire action in aging and brain health.
The conversation explores the value of narrative in dementia care, emphasizing how storytelling can help medical professionals understand their patients better and build trust. It also highlights the importance of embracing the unique perspectives of individuals with dementia and their caregivers. The documentary features diverse stories from around the world, showcasing the universal and unique aspects of dementia care.
Listeners are encouraged to watch the documentary and host screenings in their communities to raise awareness about dementia and inspire conversations about brain health and aging.
Chapters with Timestamps:
Introduction (00:00)
Introduction of Caroline Prioleau (00:19)
The Global Brain Health Institute (00:32)
Hear Say Oral History Project (02:25)
The Impact of Personal Stories (04:28)
The Power of Narrative in Dementia Care (05:14)
Overview of "Keys Bags Names Words" Documentary (08:10)
The Interplay of Emotions and Communication (11:09)
Intergenerational Connections and Global Perspectives (15:05)
Diversity of Stories and Fullness of Life (19:11)
Promoting Conversation and Community Engagement (21:13)
Embracing Moments of Grace and Beauty (22:55)
Encouragement to Watch the Documentary and Host Screenings (23:18)
Conclusion and Invitation for Further Discussion (24:36)
